Day One:

PD Superheroes!

Day One: PD Superheroes is a novel, online intervention that aims to improve quality of life measures for people with Parkinson's. We completed the six-month pilot program in April, 2021 with 16 participants from across the US and UK. The qualitative feedback was excellent, with all participants requesting a continuance and expansion of the program. This program was made possible by a generous grant from the Parkinson's Foundation.

Methods

We met online for one hour, once a week, for 27 weeks from October 2020 through April 2021. Participants learned about the hero's journey to better understand their own heroic role within their relationship to Parkinson's. We also practiced improvisation to build confidence, strength and trust within the ensemble. Weekly writing assignments kept participants conscious and aware of each step of their journey. 

Conclusions

Because every person with Parkinson's journey is unique, it is essential for each person to know, take ownership of and use their story to advocate for what they need - from medical providers, care partners and their communities. This pilot program helped participants do that. We have applied for a second round of funding for the program. The original participants would like to continue their journeys, furthering their own understanding and become mentors for others who haven't yet begun their heroic journey to understanding how to live their best with Parkinson's. 

For more information, please contact Robert, the program's creator and facilitator.